Sweden, like other Western countries, has a disability legislation that coexists with the Active Labour Market Policies. ALMP address a discourse emphasizing the importance of the able and productive ‘citizen-worker’, who is expected to craft his/her own success through meaningful personal goals and ambitions. This discourse also impacts disability groups who are actualized for support-to-work interventions, such as people with high-functioning autism (HFA). The objective of this paper is to analyse how narratives targeting ambitions and self-realisation in work life are expressed by individuals with HFA in relation to the citizen-worker discourse. This ethnographic study comprises 26 qualitative interview narratives by 11 participants with HFA. Findings indicate that the participants have developed a strong citizen-worker identity. The will is an essential point of gravity, expressed through notions of individual meaningfulness and ambitions of being perceived as resources in any vocational context. Barriers to these ambitions are experienced as personally counteractive support-to-work practices. These results suggest that disability legislation and policies are caught in a mantra of stagnating normalisation, resulting in disability-worker interventions that are incompatible with mean- ings emphasized in the citizen-worker discourse, which is the new ‘normal’ of today.
APA. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Washington, DC: APA.
Bengtsson, M. (2014). Towards standby-ability: Swedish and Danish activation policies in ﬂux. International Journal of Social Welfare, 23(S1), 54–70.
Bertilsdotter-Rosqvist, H., Brownlow, C., & O’Dell, L. (2015). ‘An association for all’—Notions of the meaning of autistic self- advocacy politics within a parent-dominated autistic movement. Journal of Community & Applied Social Psychology, 25(3), 219–231.
Borghi, V., & Van Berkel, R. (2007). Individualised service provision in an era of activation and new governance. International Journal of Sociology and Social Policy, 27(9/10), 413–424.
Cantillon, B., & Van Lancker, W. (2013). Three shortcomings of the social investment perspective. Social Policy and Society, 12(4), 553–564.
Clarke, J. (2005). New labour’s citizens: Activated, empowered, responsibilized, abandoned? Critical Social Policy, 25(4), 447–463. Culham, A., & Nind, M. (2003). Deconstructing normalisation: Clearing the way for inclusion. Journal of Intellectual and Developmental Disability, 28(1), 65–78.
Dahlstedt, M. (2013). The politics of labour market activation: Employability, exclusion and active citizenship. Revija za Sociologiju, 43(1), 5–29.
Dwyer, P. (2002). Making sense of social citizenship: Some user views on welfare rights and responsibilities. Critical Social Policy, 2, 273–299.
Elm Larsen, J. (2003). Marginelle rum. In M. Järvinen, J. Elm Larsen, & N. Mortensen (Eds.), Det magtfulle møte mellem system og klient. Aarhus: Aarhus Universitetsforlag.
Esping-Andersen, G. (1999). Social foundations of postindustrial economies. Oxford: Oxford University Press.
Garsten, C., Jacobsson, K., & Sztandar-Sztanderska, K. (2016). Negotiating social citizenship at the street-level: Local activation policies and individualization in Sweden and Poland. In Integrating social and employment policies in Europe. Active inclusion and challenges for local welfare governance. pp. 265–294. Cheltenham: Edward Elgar Publishing.
Goodley, D. (2014). Dis/ability studies: Theorising disablism and ableism. Taylor and Francis.
Graby, S. (2015). Access to work or liberation from work? Disabled people, autonomy, and post-work politics. Canadian Journal of Disability Studies, 4(2), 132–160.
Hammersley, M., & Atkinson, P. (2007). Ethnography: Principles in practice (3rd ed.). Milton Park, Abingdon, Oxon: Routledge.
Harris, P. S., Owen, R., & Gould, R. (2012). Parity of participation in liberal welfare states: Human rights, neoliberalism, disability and employment. Disability & Society, 27(6), 823–836.
Hendricks, D. (2010). Employment and adults with autism spectrum disorders: Challenges and strategies for success. Journal of Vocational Rehabilitation, 32(2), 125–134.
Higginbottom, G. M., Pillay, J. J., & Boadu, N. Y. (2013). Guidance on performing focused ethnographies with an emphasis on healthcare research. Qualitative Report, 18(9), 1–16.
Higgins, K., Koch, L., Boughfman, E., & Vierstra, C. (2008). School-to-work transition and Asperger Syndrome. Work, 31(3), 291–298.
Hillier, A., Campbell, H., Mastriani, K., Izzo, M. V., Kool-Tucker, A. K., Cherry, L., et al. (2007). Two-year evaluation of a vocational support program for adults on the autism spectrum. Career Development for Exceptional Individuals, 30(1), 35–47.
Hsieh, H., & Shannon, S. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288.
Ineland, J., Molin, M., & Sauer, L. (2015). Discursive tensions in late modern society — On education and work for people with intellectual disabilities in Sweden. European Journal of Social Education, 26–27, 118–136.
Kapteyn, A., Smith, J. P., & Van Soest, A. (2011). Work disability, work, and justiﬁcation bias in Europe and the United States. In Explorations in the economics of aging. pp. 269–312. University of Chicago Press.
Kaye, S. (2009). Stuck at the bottom rung: Occupational characteristics of workers with disabilities. Journal of Occupational Rehabilitation, 19(2), 115–128.
Krieger, B., Kinebanian, A., Prodinger, B., & Heigl, F. (2012). Becoming a member of the work force: Perceptions of adults with Asperger Syndrome. Work-A Journal of Prevention Assessment & Rehabilitation, 43(2), 141–157.
Lantz, S., & Marston, G. (2012). Policy, citizenship and governance: The case of disability and employment policy in Australia. Disability & Society, 27(6), 853–867.
Lövgren, V., Markström, U., & Sauer, L. (2017). Towards employment: What research says about support-to-work in relation to psychiatric and intellectual disabilities. Journal of Social Work in Disability & Rehabilitation, 16(1), 14–37.
Maliszewski, T. (2002). Folk high school–School for life, on traditions of adult education in the context of educational needs of the future. Adult education at the beginning of the 21st century. Theoretical and practical contexts. pp. 144–153. Opole-Radom-Bonn: Opole University.
Markström, U. (2014). Staying the course? Challenges in implementing evidence-based programs in community mental health services. International Journal of Environmental Research and Public Health, 11(10), 10752–10769.
Nilsson, S. (2010). Enhancing individual employability: The perspective of engineering graduates. Education & Training, 52, 540–547.
Nirje, B. (2003). Normaliseringsprincipen. Lund: Studentlitteratur.
Nouf-Latif, F., Andersson, K., & Markström, U. (2018). Institutional logics and professional discretion in action: A study of high functioning adults with autism in (work) provisional contexts. (Submitted, under review).
Nouf-Latif, F., Bertilsdotter-Rosqvist, H., & Markström, U. (2018). Narratives of ideal and second-option jobs among young adults with high functioning autism. Nordic Social Work Research, 1–14.
Olin, E., & Jansson, B. R. (2009). Unga med funktionshinder på väg ut i arbetslivet. FoU i Väst.
Owen, R., & Harris, P. S. (2012). ‘No rights without responsibilities’: Disability rights and neoliberal reform under new labour. Disability Studies Quarterly, 32(3).
Parker, S. (2006). International justice. The United Nations, human rights and disability. Journal of Comparative Social Welfare, 22(1), 63–78.
Powell, M., & Barrientos, A. (2004). Welfare regimes and the welfare mix. European Journal of Political Research, 43, 83–105. Richards, J. (2012). Examining the exclusion of employees with Asperger syndrome from the Workplace. Personnel Review, 41(5), 630–646.
Roper, J. M., & Shapira, J. (2000). Ethnography in nursing research. Thousand Oaks, CA: Sage Publications.
Røberg, A. S. B., Hansen, H. P., Feiring, M., & Romsland, G. I. (2017). Rehabilitation in momentum of Norwegian coordination reform: From practices of discipline to disciplinary practices. ALTER-European Journal of Disability Research/Revue Européenne de Recherche sur le Handicap, 11(3), 193–207.
Scheid, L. T. (2008). Competing institutional demands: A framework for understanding mental health policy. Social Theory & Health, 6(4), 291–308.
Schierup, C.-U., & Ålund, A. (2011). The end of Swedish exceptionalism? Citizenship, neo-liberalism and politics of exclusion. Race & Class, 53(1), 45–64.
Socialstyrelsen. (2010). På tröskeln. Daglig verksamhet med inriktning på arbete. Socialstyrelsen.
Socialstyrelsen. (2017). Statistik om insatser enligt lagen om stöd och service till vissa funktionshindrade 2016. Socialstyrelsen.
SOU. (2018). Statens offentliga utredningar. Flexibel rehabilitering. (21; Retrieved 6 November 2018, from http://www.sou.gov.se/wp-content/uploads/2018/03/SOU-2018 21 webb.pdf)
Tedlock, B. (1991). From participant observation to the observation of participation: The emergence of narrative ethnography. Journal of Anthropological Research, 47(1), 69–94.
Tsaousides, T., & Jome, L. (2008). Perceived career compromise, affect and work-related satisfaction in college students. Journal of Vocational Behavior, 73(2), 185–194.
UN CRPD. (2006). United Nations convention on the rights of persons with disabilities. (Retrieved 6 November 2018, from http://www.un.org/disabilities/documents/convention/convoptprot-e.pdf)
Ward, M. J., & Meyer, R. N. (1999). Self-determination for people with developmental disabilities and autism: Two self-advocates’ perspectives. Focus on Autism and Other Developmental Disabilities, 14(3), 133–139.
Wetherell, M., & Potter, J. (1992). Mapping the language of racism: Discourse and the legitimation of exploitation. Hemel Hempstead: Harvester Wheatsheaf.
Wrzesniewski, A., & Dutton, J. E. (2001). Crafting a job: Re-visioning employees as active crafters of their work. Academy of Management Review, 26(2), 179–201.